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"Information wants to be free" (John Gilmore)





PROF.DR.DR.habil.JOSEPH SCHMUCKER VON KOCH

University of Regensburg, Bavaria, Germany

BIOETHICS, MEDICAL ETHICS

Scientific Research Center: University of Regensburg, D-93040 Regensburg, Germany


GENERAL TEXTS AND INFOS

Making better use of existing cancer data: Patient Reported Outcomes and Behavioural Evidence: a new international initiative.Authors: ANDREW BOTTOMLEY, CHANTAL QUINTEN, CORNEEL COENS, FRANCESCA MARTINELLI, MURIELLE MAUER, JOHN MARINGWA, CHARLES S. CLEELAND, HENNING FLECHTNER, CAROLYN GOTAY, EVA GREIMEL, MADELEINE KING, DAVID OSOBA, MARTIN J.B. TAPHOORN, BRYCE B. REEVE, JOLIE RINGASH, JOSEPH SCHMUCKER-VON KOCH, JOACHIM WEIS.:European Journal of Cancer Care.Volume 18, Issue 2, Date: March 2009, Pages: 105-107
1)Health-Related Quality of Life indicators and overall Quality of Life: results from a cluster analysis on baseline EORTC QLQ-C30 data from 6739 cancer patients.Authors:C. Coens, F. Martinelli, C. Quinten, C. Cleeland, E. Greimel, M. King, J. Ringash, J. Schmucker-Von Koch, Q. Shi, A. Bottomley; 2)Is patient self-reporting more accurate than clinician reporting of symptoms for predicting survival in patients with cancer? Meta-analysis of 30 closed EORTC Randomized Controlled Trials. Authors:A. Bottomley, C. Coens, M. King, D. Osoba, M. Taphoorn, B. Reeve, J. Ringash, J. Schmucker-Von Koch, J. Weis, C. Quinten. ASCO Conference Orlando, Florida, USA 29 May – 02 June 2009
A methodological investigation to define a clinical relevant cut-off point in the ordinal scale of the EORTC QLQ-C30 questionnaire. Authors: Corneel Coens, Francesca Martinelli, John Maringwa, Murielle Mauer, Charles Cleeland, Henning Flechtner, Carolyn Gotay, Eva Greimel, Madeleine King, David Osoba, Martin J.B. Taphoorn, Bryce B. Reeve, Jolie Ringash, Joseph Schmucker-Von Koch, Joachim Weis, Andrew Bottomley. ISPOR 12th Annual European Congress 24-27 October 2009, Le Palais des Congrès de Paris, Paris, France
1)POSTER PRESENTATION: THE ASSOCIATION BETWEEN AGE AND GENDER AND THE FINANCIAL BURDEN IN CANCER PATIENTS: A POOLED ANALYSIS OF CLOSED EORTC CANCER TRIALS.Chantal Quinten, John Maringwa, Francesca Martinelli, Corneel Coens, Quality of Life, EORTC, Brussels, Belgium, Charles S. Cleeland, Symptom Research, University of Texas, Houston, Texas, Henning Flechtner, Child and Adolescent Psychiatry and Psychotherapy, University Magdeburg, Magdeburg, Germany, Carolyn Gotay, School of Population and Public Health, University of British Columbia, Vancouver, British Columbia, Canada, Eva Greimel, Obstetrics and Gynecology, Medical University Graz, Graz, Austria, Madeleine King, Psycho-oncology Cooperative Research Group, University of Sydney, Sydney, Australia, David Osoba, Quality of Life, Quality of Life Consulting, West Vancouver, British Columbia, Canada, Martin J. Taphoorn, Neurology, VU Medical Center/Medical Center Haaglanden, Amsterdam/The Hague, Netherlands, Bryce B. Reeve, Cancer Control and Population Science, National Cancer Institute, Bethesda, Maryland, Jolie Ringash, The Princess Margaret Hospital, University of Toronto, Toronto, Canada, Joseph Schmucker-Von Koch, Medical Ethics, University of Regensburg, Regensburg, Germany, Joachim Weis, Psychooncology, University of Freiburg, Freiburg, Germany, Andrew Bottomley, Quality of Life, EORTC, Brussels, Belgium    2)POSTER PRESENTATION: MINIMAL IMPORTANT DIFFERENCES FOR HEALTH RELATED QUALITY OF LIFE SCORES FROM THE EORTC QLQ-C30 IN LUNG CANCER PATIENTS: ANALYSIS OF POOLED DATA  John Maringwa, Chantal Quinten, Francesca Martinelli, Corneel Coens, Quality of Life, EORTC, Brussels, Belgium, Charles S. Cleeland, Symptom Research, University of Texas, Houston, Henning Flechtner, Child and Adolescent Psychiatry and Psychotherapy, University Magdeburg, Magdeburg, Germany, Carolyn Gotay, School of Population and Public Health, University of British Columbia, Vancouver, Canada, Eva Greimel, Obstetrics and Gynecology, Medical University Graz, Graz, Austria, Madeleine King, Psycho-oncology Co-operative Research Group, University of Sydney, Sydney, Australia, David Osoba, Quality of Life, Quality of Life Consulting, West Vancouver, Canada, Martin J. Taphoorn, Neurology, VU Medical Center/Medical Center Haaglanden, Amsterdam/The Hague, Netherlands, Bryce B. Reeve, Cancer Control and Population Science, National Cancer Institute, Bethesda, Jolie Ringash, The Princess Margaret Hospital, University of Toronto, Toronto, Canada, Joseph Schmucker-Von Koch, Medical Ethics, University of Regensburg, Regensburg, Germany, Joachim Weis, Psycooncology, University of Freiburg, Freiburg, Germany, Giuseppe Giaccone, Medical Oncology Branch, National Cancer Institute, Bethesda, Pieter Postmus, Pneumology, Vrije Universiteit Medisch Centrum, Amsterdam, Netherlands, Egbert F. Smit, Pulmonary Diseases, Vrije Universiteit VUMC, Amsterdam, Netherlands, Jan Van Meerbeeck, Thoracic Oncology, Universiteit Gent, Gent, Belgium, Andrew Bottomley, Quality of Life, EORTC, Brussels, Belgium  3)ORAL PRESENTATION: A SYMPTOM INDEX FOR CANCER PATIENTS BASED ON THE QLQ-C30  Francesca Martinelli, Chantal Quinten, John Maringwa, Corneel Coens, Quality of Life, EORTC, Brussels, Belgium, Charles Cleeland, Symptom Research, MD Anderson Cancer Center, Houston, Texas, Henning Flechtner, Child and Adolescent Psychiatry and Psychotherapy, University of Magdeburg, Magdeburg, Germany, Carolyn Gotay, School of Population and Public Health, University of British Columbia, Vancouver, Canada, Eva Greimel, Obstetrics and Gynecology, Medical University Graz, Graz, Austria, Madeleine King, Psycho-oncology Co-operative Research Group, University of Sydney, Sydney, Australia, Tito Mendoza, Toru Okuyama, Symptom Research, MD Anderson Cancer Center, Houston, Texas, David Osoba, Quality of Life, Quality of Life Consulting, West Vancouver, Canada, Bryce Reeve, Cancer Control and Population Science, National Cancer Institute, Bethesda, Maryland, Jolie Ringash, The Princess Margaret Hospital, University of Toronto, Toronto, Canada, Joseph Schmucker-Von Koch, Medical Ethics, University of Regensburg, Regensburg, Germany, Qiuling Shi, Symptom Research, MD Anderson Cancer Center, Houston, Texas, Martin Taphoorn, Neurology, Medical Centre Haaglanden, The Hague, The Netherlands, Xin Wang, Symptom Research, MD Anderson Cancer Center, Houston, Texas, Joachim Weis, Psychooncology, University of Freiburg, Freiburg, Germany, Young Yun, Quality of Cancer Care Branch, National Cancer Center, Goyang, Korea, Andrew Bottomley, Quality of Life, EORTC, Brussels, Belgium  ISOQOL, 16th Annual Conference October 28-31, 2009, New Orleans, Louisiana, USA
Oral presentation:An evaluation of the association between age and health related quality of life and symptoms functioning in cancer patients. C. Quinten, F. Martinelli, J. Maringwa, C. Coens, E. Greimel, H. Flechtner, J. Schmucker-Von Koch, M. Taphoorn, J. Weis, A. Bottomley on behalf of the EORTC. ECCO15-ESMO34, 20-24 September Berlin, Germany

Tagung (Hanns-Seidel-Stiftung): Chancen der Zukunftstechnologien - Fakten und Bewertungsmassstaebe (Conference (Hanns-Seidel-Foundation): The potentials and perspectives of novel technological developments (nanotechnology, biotechnology, information technology) - facts and assessment criteria):This site contains a series of lectures (partly in English) given by Prof. Dr. Peter Fromherz, Director at the Max-Planck-Institute for biochemestry (Department of Membrane- and Neurophysics) in Martinsried (near Munich), Prof. Dr.Dr. Joseph Schmucker-von Koch, University of Regensburg/Deputy Chairman of the Ethics Committee of the Chamber of Medical Authorities in the State of Bavaria (Bayerische Landesaerztekammer), Prof. Dr. Hans-Werner Mewes, Chair of Genomeoriented Bioinformatics at the Technical University Munich/Director of the Institute for Bioinformatics at the Research Center for Health and the Environment (Forschungszentrum für Umwelt und Gesundheit) (GSF) and others.
Informational reality, real world and the human brain/mind (Informationelle Realitaet - reale Welt - Bewusstsein).:This site contains a lecture given at the GMD Research Center for Information Technology (now Fraunhofer-Institut fuer Rechnerarchitektur und Softwaretechnologie FIRST).
Is there a right to beauty ? Life as an aesthetical project Opening lecture on the consequences of the convergence and mutual impact of nanotechnology, biotechnology and information technology for future developments in aesthetical-plastic surgery, given on March 7, 2003 at the spring symposium of the Academy for Aesthetical-Plastic Surgery, organized by the President of the German Association of Aesthetical-Plastic Surgery, Dr. Neuhann-Lorenz, Munich
Is a value oriented concept of man anachronistic ? Sloterdijk´s thoughts on the social function of biotechnology in the light of current bioethical standards.: English Lecture given at the European College of Liberal Arts, Berlin
The Internet - philosophical and social perspectives. : This site contains all the lectures given at a congress on the Internet which dealt with the various impacts the multi-media-world will have on our societies. My lecture can also be found here.
Philosophical Aspects of the Internet: This site contains a lecture given at the congress mentioned above
Bioethics, Sloterdijk and Humanism.: This site contains a lecture given on Nov 6,1999 on a rather dramatic German philosophical debate which involved also Juergen Habermas
Science Policy and Basic Research Programs.: This site contains a lecture (in English) given at the 16 th Annual Convention of the Union of Arab Medical Doctors in Europe on Sept 17, 1999
European Academy for Cultural and Scientific Developments: This site tells you all about the programmatic guidelines and organisational structure of the Academy.
Agenda of the European Academy for Cultural and Scientific Developments and other activities: This site contains the agenda of the European Academy for Cultural and Scientific Developments and other activities.
Press reports and News: This site tells you all about the programs and activities of the European Academy for Cultural and Social Affairs (Offenberg Castle) which have been performed under the directorate of Prof.Schmucker-von Koch.
Update Angermuehler Gespraeche: Here you will find a link to the full text version of all the lectures given by internationally renowned scholars at the meetings of the workgroup Medicine Ethics Law. The lectures were organized by Prof.Dr.Dr. Schmucker-von Koch.
Angermuehler Gespraeche. Lecture given by the former German minister of health Prof.Dr. Ursula Lehr, Bonn: Title:Solidarität zwischen den Generationen - Wunsch oder Wirklichkeit? Konsequenzen des demographischen Wandels. The lecture was given at one of the meetings of the workgroup Medicine Ethics Law. The lecture was organized by Prof.Dr.Dr. Schmucker-von Koch.
Angermuehler Gespraeche. Lecture given by Prof.Dr. Ernst Gehmacher, Vienna: Title:Lebensphasen und Lebensentwuerfe als Faktoren gesellschaftlicher Entwicklung. The lecture was given at one of the meetings of the workgroup Medicine Ethics Law. The lecture was organized by Prof.Dr.Dr. Schmucker-von Koch.


Portale di Bioetica (in Italian)The site "Portale di Bioetica" covers the major areas of current bioethical debate in Italy and on an international level.

Congress of the German Society of Plastic Surgery and the German Society of Aesthetic-Plastic Surgery in Heidelberg.September 18-21, 2002. This site gives you the full program of the congress (pdf-files).My lecture is mentioned on page 9 and 41 of the program. See also "AGENDA".


BASIC BIOETHICAL GUIDELINES

Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: This site contains the full text of the European Convention on Human Rights and Biomedicine
Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: This site contains the full text of the European Convention on Human Rights and Biomedicine (German Version)
ADDITIONAL PROTOCOL TO THE Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine, on the Prohibition of Cloning Human Beings : This site shows you the complete English text of the Additional Protocol on Cloning Human Beings
EUROPEAN COURT OF HUMAN RIGHTS: CASE OF VO v. FRANCE. Judgment,Strasbourg, July 8, 2004 : This site refers to the text of the court´s judgment which implies far reaching consequences for the protection of embryos within the EUROPEAN UNION (the European Court of Human Rights states that embryos are no persons and therefore don´t deserve the same protection as persons, i.e. born members of humankind. The right to live can only be attributed to persons, the court states)
UNESCO-Universal Declaration on the Human Genome and Human Rights: This site contains the full text of the UNESCO-Declaration in English and German
UNESCO-UNIVERSAL DECLARATION on BIOETHICS and HUMAN RIGHTS:This site refers to the full text of the Declaration as of 19 October 2005
German Law Concerning the Protection of Embryos (Deutsches Embryonenschutzgesetz): This site shows the complete text of the German Law concerning the Protection of Human Embryos (in German)
Directive 98/44/EC of the European Parliament and of the Council of 6 July 1998 on the Legal Protection of Biotechnological Inventions, July 30, 1998(Official Journal L 213 , 30/07/1998 P. 0013 - 0021): This site shows the complete text of the directive which had to be transformed into national law by the member states. For problems with the adoption of this directive in Germany see the next link below
Parliamentary Debate on the German Law concerning BIOPATENTING (Entwurf BIOPATENTGESETZ. Gesetz zur Umsetzung der Richtlinie ueber den rechtlichen Schutz biotechnologischer Erfindungen) : This site contains under TOPIC 25 page 13678 the complete text of the debate in the German Parliament (Deutscher Bundestag) on December 3, 2004 (PDF File)

IMPORTANT !!!: The biopatent law approved on December 3 by Germany's Bundestag (Parliament), limits patent protection on human gene sequences to "disclosed functions" at the time of the patent application. That means that under German law, a patent awarded to a scientist awarded on a human DNA sequence used for a specific function would not cover a second function discovered later by another researcher using the same DNA sequence. This contradicts the intent of the EU Directive to give full patent protection to the discoverer of the human gene sequence, including for new functions discovered later by other scientists using the same gene sequence. However, applicants can skip the stricter German law by directly applying with the European Patent Office in Munich which strictly follows the Directive 98/44/EC of the European Parliament and of the Council of 6 July 1998 on the Legal Protection of Biotechnological Inventions, July 30, 1998. This legal way to skip the German law by applying directly with the European Patent Office caused Dr. Wolfgang Wodarg, a prominent member of the Enquete-Commission of the German Parliament on Ethics and Law in Medicine not to vote in favor of the law during the parliamentary session on Dec 3. As Dr. Wolfgang Wodarg (Social Democratic Party (SPD)) stated in "Anlage 8, Erklärung nach § 31 GO", on page 13710 of the parliamentry protocol (see link):"Im Ergebnis gilt die sinnvolle und richtige Einschränkung des Stoffschutzes daher jetzt nur für die zukünftige Erteilung von Patenten durch deutsche Patentämter, nicht aber für die in Deutschland geltenden Patente, die durch das Europäische Patentamt vergeben wurden und werden. Da über 90 Prozent aller Patente auf Gene und Gensequenzen durch das Europäische Patentamt erteilt werden, bleibt die sinnvolle Einschränkung des Stoffschutzes, die das Umsetzungsgesetz für § 1 des deutschen Patentgesetzes vorsieht, praktisch wirkungslos. Es ist durch einen Umweg über das Europäische Patentamt somit weiterhin möglich, für den Geltungsbereich des deutschen Patentgesetzes unbeschränkte Stoffpatente auf Gene zu erhalten."("As a result the meaningful and correct restriction of the material protection applies therefore now only to the future assignments of patents by German patent offices, not however to patents valid in Germany, which were and will be assigned by the European Patent Office.Since over 90 per cent of all patents on genes and gene sequences are assigned by the European Patent Office, the meaningful restriction of the material protection, which the conversion/compliance law wants to be applied to § 1 of the German Patent Act, remains practically ineffective. It is thus further possible by a detour via the European Patent Office to receive for the area of the legal application of the German Patent Act unrestricted material patents on genes.")


Declaration of Helsinki of the World Medical Association: Recommendations Guiding Medical Doctors in Biomedical Research Involving Human Subjects (latest version) : The site shows you the full text (latest version, 2008)in English. The first version was adopted in 1964 and has been amended six times since, most recently at the General Assembly in October 2008. The World Medical association states on its website: "The current (2008) version is the only official one; all previous versions have been replaced and should not be used or cited except for historical purposes".
ICH HARMONISED TRIPARTITE GUIDELINE.Guideline for Good Clinical Practice (GCP):This site shows you the full text in English

International Conference on Harmonisation of Technical Requirements for Registration of Pharmaceuticals for Human Use:This site contains regularly updated information on the ICH process

DIRECTIVE 2001/20/EC of the European Parliament and of the Council of 4 April 2001 on the approximation of laws, regulations and administrative provisions of the Member States relating to the implementation of good clinical practice in the conduct of clinical trials on medicinal products for human use The Directive 2001/20/EC had to be transformed into national law by the European Member States before May 1, 2003 (PDF-file)
Richtlinie 2001/20/EG des Europäischen Parlaments und des Rates vom 4. April 2001 zur Angleichung der Rechts- und Verwaltungsvorschriften der Mitgliedstaaten über die Anwendung der guten klinischen Praxis bei der Durchführung von klinischen Prüfungen mit Humanarzneimitteln The Directive 2001/20/EC had to bo transformed into national law by the European Member States before May 1, 2003/ Diese Richtlinie musste bis zum 01.Mai 2003 in nationales Recht umgesetzt werden.(PDF-file)


Empfehlungen zur Planung, Durchführung und Auswertung von Anwendungsbeobachtungen vom 12 November 1998(Recommendations for planning, performing and evaluating observational trials of Nov 12 1998)Bekanntmachung des Bundesinstituts für Arzneimittel und Medizinprodukte(BfArM)(Published by the German Federal Institute for Medicine and medicinal Products) vom 12.11.1998 (only of historical importance. Due to the new legal situation in the context of the EC Directive 2001/20/EC a new version is in the making. A final version will be posted here as soon as it is available. The BfArM has deleted the link to its former recommendations from its website (!)

Verordnung über die Anwendung der Guten Klinischen Praxis bei der Durchführung von klinischen Prüfungen mit Arzneimitteln zur Anwendung am Menschen (GCP-Verordnung – GCP-V), August 12, 2004 This document contains the full text of binding guidelines concerning good clinical practice in clinical trials in accordance with the 12 th law modifying the AMG (German law regulating the use and application of medicines). These guidelines as well as the modification of the AMG were necessary due to the requirements of the European Directive 2001/20/EC

12. Gesetz zur Aenderung des Arzneimittelgesetzes vom 30.Juli 2004(12 th law modifying the AMG (German law regulating the use and application of medicines) This law now meets the requirements of the European Directive 2001/20/EC

GUIDELINE ON STRATEGIES TO IDENTIFY AND MITIGATE RISKS FOR FIRST-IN HUMAN CLINICAL TRIALS WITH INVESTIGATIONAL MEDICINAL PRODUCTS This pdf file contains the complete document


International Protection of Human Rights and Economic Activity (Internationaler Schutz der Menschenrechte und Wirtschaftstaetigkeit)Joint Declaration by the German Federal Government,BDI and BDA,DGB, Forum Human Rights and VENRO This link will lead you to the full text (PDF-file)

Final report of the Enquete-Commission of the German Parliament (Deutscher Bundestag) "Law and Ethics in Medicine". This link will lead you to the complete text (PDF-file)

Opinion of the German National Ethics Committee on "Genetic Diagnostics before and during pregnancy" (Jan 23, 2003).This link will lead you to the complete text (PDF-file).For other opinions of the Ethics Council on numerous ethical issues see Stellungnahmen (Opinions)


German Ethics Council: Historical background: The predecessor of the German Ethics Council, the former German "National" Ethics Committee was installed by former(chancellor) Bundeskanzler Gerhard Schroeder personally to advise him on ethical issues to be debated in the field of modern medicine and all its ramifications. Due to this origin the status of the National Ethics Committee could not be compared to the legal status of the National Ethics Committees of France or Italy for instance. Some critics said that the name of this chancellor-founded committee was a misuse of the word "National". There was a lot of criticism from members of the former Enquete Commission "Law and Ethics in modern medicine" of the German Parliament (Deutsche Bundestag)(15 th session period) concerning establishing an ethical body without parliamentary approval which calls itself "National". The new "German Ethics Council" is now working on the basis of a parliamentary approval. Besides that, the ethical review of clinical trials in Germany is done by ethics committees organized by the respective Landesaerztekammer (chamber of medical authorities) of each federal state or within Medical Faculties. For more information concerning the discussions that took place see the following article in the BERLINER ZEITUNG: Feilschen um den Ethikrat (Bargaining about the Ethics Council)



INTERESTING TO REMEMBER:

March 14, 2000 PRESS BRIEFING BY DR. NEAL LANE, DIRECTOR OF THE FORMER(US)PRESIDENT'S (Clinton´s)OFFICE ON SCIENCE AND TECHNOLOGY POLICY AND DR. FRANCIS COLLINS, DIRECTOR OF THE HUMAN GENOME PROJECT: This site shows the original text of the press conference dealing with very important questions concerning access to and property of the results of human genome research


STEMCELL RESEARCH:

European Science Foundation Policy Meeting: Human stem cell research: scientific uncertainties and ethical dilemmas (June 2001) (PDF-file)
U.S.House of Representatives: HUMAN CLONING PROHIBITION ACT OF 2001(passed the House of Representatives July 31,2001) This link will lead you to the complete text (PDF-file)

U.S.House of Representatives: HUMAN CLONING PROHIBITION ACT OF 2003(passed the House of Representatives February 27,2003) This link will lead you to the complete text (PDF-file)

Human Cloning Prohibition Act of 2005 (Introduced in Senate) This link will lead you to the complete text

ATTACK OF THE CLONES: LEGISLATIVE APPROACHES TO HUMAN CLONING IN THE UNITED STATES Quite an informative article analysing the current legal debate in the US by Adrienne N. Cash

THE WHITE HOUSE: REMARKS BY THE PRESIDENT ON STEM CELL RESEARCH, The Bush Ranch, Crawford, Texas This link will lead you to the complete address delivered by the U.S. President George W. Bush on August 9, 2001

Interim Report of the Enquete-Commission of the German Parliament (Deutscher Bundestag) "Law and Ethics in Medicine" on Stem Cell Research This link will lead you to the complete text (PDF-file)

Recommendations of the DEUTSCHE FORSCHUNGSGEMEINSCHAFT /GERMAN SCIENTIFIC RESEARCH ORGANISATION on human STEMCELL RESEARCH: This site shows the full text in German (PDF-files)

Criticizing the current legal restrictions for research with human embryonic stemcells in Germany the DEUTSCHE FORSCHUNGSGEMEINSCHAFT /GERMAN SCIENTIFIC RESEARCH ORGANISATION has issued a new statement (dated October 2006) on human STEMCELL RESEARCH in Germany: This site shows the full text in German (PDF-files)

Partly in response to the forementioned statement by the Deutsche Forschungsgemeinschaft (DFG)the Federal Association of the Pharmaceutical Industry in Germany (Bundesverband der Pharmazeutischen Industrie) has issued a statement warning of irresponsible promises concerning the availability and use of human embryonic stemcells for therapeutic purposes: This site shows the full text in German (PDF-files)

Speech by the former President of the Federal Republic of Germany JOHANNES RAU concerning the role of human dignity within the life sciences (specifically addressing embryonic stem cell research, preimplantation diagnostics)This link will lead you to the full text in German
Speech by the former President of the Federal Republic of Germany JOHANNES RAU concerning the role of human dignity within the life sciences (specifically addressing embryonic stem cell research, preimplantation diagnostics)This link will lead you to the full text in ENGLISH

Protocol 14/214 of the Session of the German Parliament (Deutscher Bundestag) on Jan 30,2002 concerning the import of human embryonic stem cells to Germany This link will lead you to the complete text (PDF-file)

Draft for a law concerning the import of human embryonic stem cells to Germany(February 22,2002)(Entwurf eines Gesetzes zur Sicherstellung des Embryonenschutzes im Zusammenhang mit Einfuhr und Verwendung menschlicher embryonaler Stammzellen (Stammzellgesetz – StZG) This link will lead you to the complete text

(Final) Law concerning the import of human embryonic stem cells to Germany(28 June 2002)(Gesetz zur Sicherstellung des Embryonenschutzes im Zusammenhang mit Einfuhr und Verwendung menschlicher embryonaler Stammzellen (Stammzellgesetz – StZG) This link will lead you to the complete text

Gesetz zur Aenderung des Stammzellgesetzes vom 14. August 2008 (Law to change the previous stemcell law) This law which entered into force as from 14 August 2008 contains two important changes compared to the previous stemcell law of 28 June 2002: 1) German Researchers are allowed to use stem cells imported to Germany which have been created before 1 May 2007. According to the stem cell law of 2002 they were only allowed to use imported stem cells created before 1 January 2002. 2) German Researchers will not be punished or even put to jail when they use stem cells abroad which they are not allowed to use in Germany. This follows from Article 1, sentence 3 of the new law of 14 August 2008

Statement by 40 Nobel Laureates Regarding Cloning (published on April 10, 2002 by the American Society for Cell Biology) This link will lead you to the complete text

United Nations Declaration on Human Cloning, to be found under III. Recommendation of the Sixth Committee, p. 7, 24 Feb 2005 This link will lead you to the complete text of the Declaration

press release concerning the United Nations Declaration on Human Cloning reporting also on the voting position of the member statesThis link will lead you to the complete text

Protocol 14/233 of the plenary session of the German Parliament which discussed the final draft of the law concerning the import of human embryonic stemcells on April 25,2002. Please note that also a few other subjects were discussed during the plenary session which have therefore been included in the protocol and have nothing to do with the stemcell discussion. The pages dealing with the stemcell discussion are 107-128 and 153-157. This link will lead you to the complete text. (PDF-file)

(German)Law for the Protection of Human Embryos in the Context of Import and Use of Human Embryonic Stemcells (Stemcell Law)("Gesetz zur Sicherstellung des Embryonenschutzes im Zusammenhang mit Einfuhr und Verwendung menschlicher embryonaler Stammzellen; Stammzellgesetz-StZG") This link will lead you to the official text (law effective as of July 01,2002)(PDF-file)

European Commission: survey on opinions from national ethics committees or similar bodies, public debate and national legislation in relation to stem cells OVERVIEW of Opinions from National Ethics Committees or similar bodies, public debate and national legislation in relation to human embryonic stem cell research and use IN EU MEMBER STATES (for Germany see pp.21-25 of the document; National Contact Persons which contributed to the survey: see p.78 where I am also mentioned as national contact person)

European Commission: survey on opinions from national ethics committees or similar bodies, public debates and national legislation in relation to stem cells OVERVIEW of Opinions from National Ethics Committees or similar bodies, public debate and national legislation in relation to human embryonic stem cell research and use IN NON-EU MEMBER STATESCOMMISSION STAFF WORKING PAPER Report on Human Embryonic Stemcell Research, English VersionThe report has been transmitted to the European Parliament and the Council and will provide the basis for an open and informed debate at the upcoming interinstitutional seminar on 24 April 2003.

COMMISSION STAFF WORKING PAPER Report on Human Embryonic Stemcell Research, German VersionThe report has been transmitted to the European Parliament and the Council and will provide the basis for an open and informed debate at the upcoming interinstitutional seminar on 24 April 2003.


GENETIC DATA PROTECTION ISSUES (international debate)

PROVISIONAL PRELIMINARY DRAFT OF THE INTERNATIONAL DECLARATION ON HUMAN GENETIC DATA This Provisional Preliminary Draft of the International Declaration on Human Genetic Data has been elaborated by the Drafting Group of the International Bioethics Committee (IBC) for consideration by the IBC at its Tenth session (UNESCO House, 12-14 May 2003). It includes the proposals made by the IBC at its Ninth Session (Montreal, Canada, 26-28 November 2002) and the observations formulated during the Public Hearings Day (Monte-Carlo,Monaco, 28 February 2003). In addition, it takes into account the comments made at the 166th Session of the Executive Board of UNESCO (UNESCO House, 11 April 2003), and it also takes stock of the replies received to the Questionnaire concerning an Outline of this declaration.

REPORT ON THE PREPARATION OF AN INTERNATIONAL DECLARATION ON HUMAN GENETIC DATA In accordance with 165 EX/Decision 3.4.2, the Director-General hereby submits this progress report on the work carried out by UNESCO concerning the elaboration of an international declaration on human genetic data.

International Declaration on Human Genetic Data, Oct 16, 2003 This document contains the final official text adopted by the General Conference during its 32nd Session in Paris, 29 September to 17 October 2003

WORKING PARTY ON HUMAN GENETICS(CDBI-CO-GT4:Working document on the applications of genetics for health purposes) Working document on the applications of genetics for health purposes This working document is made public under the responsibility of the Working Party on Human Genetics (CDBI-CO-GT4). The Council of Europe Steering Committee on Bioethics (CDBI), which agreed with the publication of the document, has not yet examined it. The document therefore does not necessarily reflect the views of the CDBI. It is the outcome of the Working Party's discussions so far on applications of genetics for health purposes, with a view to the elaboration of an additional Protocol to the Convention on Human Rights and Biomedicine. This document is being made public, together with an explanatory note, to obtain comments from European non-governmental organisations, which will be taken into account for the elaboration of the draft additional Protocol. Comments should be submitted to the Secretariat by e-mail before 30 April 2003 to laurence.lwoff@coe.int or terry.journiac@coe.int. Comments should be as precise and concise as possible. They should refer to specific provisions in the document or, if appropriate, make proposals for complementary provisions.

US SENATE: GENETIC INFORMATION NONDISCRIMATION ACT of 2003This link leads to the full text of the act that passed the US Senate on 14 October 2003 to prohibit discrimination on the basis of genetic information with respect to health insurance and employment.The bill died in the House !

US SENATE: GENETIC INFORMATION NONDISCRIMATION ACT of 2005This link leads to the full text of the act that passed the US Senate(109TH CONGRESS 1ST SESSION S. 306) on Feb 17, 2005 to prohibit discrimination on the basis of genetic information with respect to health insurance and employment.The text of the bill is almost identical with that of the bill of 2003 that died in the House of Representatives !

Finally:The GENETIC INFORMATION NONDISCRIMATION ACT becomes lawThirteen years after it was first introduced, the Genetic Information Nondiscrimination Act (“GINA”) was signed into law on May 21, 2008 by President Bush. GINA establishes a uniform set of rules against genetic-based discrimination applicable to employers and health insurers.
And here it is: GENETIC INFORMATION NONDISCRIMATION ACT of 2008 (H.R.493)This link leads to the full text of the act

Opinion of the German Ethics Council ("Nationaler Ethikrat", see link above) on biobanks and genetic data protection. This link leads to the full text which is a valuable basis for further discussions and additional clarifications


NEW !!!

European Commission: Survey on opinions from National Ethics Committees or similar bodies, public debate and national legislation in relation to human biobanks/EU-countries and Non-EU countries OVERVIEW of Opinions from National Ethics Committees or similar bodies, public debate and national legislation in relation to human biobanks (for Germany see pp.20-23 of the document; National Contact Persons which contributed to the survey: see p.69 where I am also mentioned as national contact person)


IMPORTANT JURISDICTION FOR GERMANY:

BUNDESGERICHTSHOF (BGH)-Urteil v. 12.01.2005 (judgement as of Jan 12, 2005)concerning the use of genetic data, listed in the court´s acts under AZ: XII ZR 60/03 The Bundesgerichtshof (federal court) has made several important statements concerning the use of genetic data in paragraph 2 c) aa)of the judgement (page 6/7) which are also relevant for the use of genetic data in science.


NEW !!!


SECURITY ISSUES (DUAL USE ISSUES (Military, Terrorism)) and the BIOSCIENCES(international debate)

OECD-website dealing with security issues and the biosciences The Organisation for Economic Cooperation and Development's (OECD) International Futures Program (IFP) has launched a new website dealing with security issues and the biosciences. The website provides a comprehensive information portal for general biosecurity information as well as more focused information on codes of conduct and regulatory oversight mechanisms for the life sciences.




Prof.Dr.Dr.habil.Joseph Schmucker-v. Koch (reading Habermas)

e-mail to: joseph.schmucker-von-koch@gmx.net
University of Regensburg, Institute of Philosophy
Universitaetsstrasse 31
Regensburg, Bavaria 93040
Germany



Positions I currently hold :

- Deputy Chairman of the Ethics Committee of the Chamber of Medical Authorities of the State of Bavaria (Bayerische Landesaerztekammer) Bayerische Landesaerztekammer

- member of the European Commission´s (Brussels) Peer Review Board of experts in Bioethics and Medical Ethics

- National Contact Person of the European Commission (Brussels) concerning the ethical debate and legal developments in Germany related to stemcell research, biobanks and xenotransplantation

- Project Consultant to the EORTC (European Organisation for Research and Treatment of Cancer), Brussels, Belgium European Organisation for the Research and Treatment of Cancer EORTC,PROBE project EORTC project advisory board

- Project consultant to the Max-Delbrueck-Center for Molecular Medicine, Berlin (till 2004) Max Delbrueck Center for Molecular Medicine

- member of the Senior Advisory Board of the European College of Liberal Arts (ECLA), Berlin.See List of all Senior Advisory Board Members

- director of the European Academy for Cultural and Scientific Developments



For the latest activities concerning lectures, symposia etc. please click on the link for the agenda of the EUROPEAN ACADEMY FOR CULTURAL AND SCIENTIFIC DEVELOPMENTS above.


Together with the editor (neurologist) I have published the following books related to Medical Ethics:

/Engelhardt, Dietrich v. (Medizinische Universität Lübeck): Der Wandel der Vorstellungen von Gesundheit und Krankheit in der Geschichte der Medizin. Passau: Wissenschaftsverlag Rothe 1995 (with an introduction by Joseph Schmucker-von Koch)

/Kampits, Peter(Universität Wien/Wissenschaftliche Landesakademie für Niederösterreich) : Das dialogische Prinzip in der Arzt-Patienten-Beziehung. Passau: Wissenschaftsverlag Rothe 1996 (with an introduction by Joseph Schmucker-von Koch)

/Hartmann, Fritz (Medizinische Hochschule Hannover): Mit der Krankheit leben. Über Lebenswert und Würde chronisch kranker Menschen. Passau: Wissenschaftsverlag Rothe 1996 (with an introduction by Joseph Schmucker-von Koch)

/Baier, Horst (Universität Konstanz): Der Wertewandel im Gesundheitswesen in europäischer Perspektive. Bedingungen und Folgen für die Medizinethik. Passau: Wissenschaftsverlag Rothe 1996 (with an introduction by Joseph Schmucker-von Koch)

/Schipperges, Heinrich (Universität Heidelberg): Lebensqualität und Medizin in der Welt von morgen. Passau: Wissenschaftsverlag Rothe 1996 (with an introduction by Joseph Schmucker-von Koch)

/Schaefer, Hans (Universität Heidelberg): Süssmilchs göttliche Ordnung der Natur - oder: wie lange lebt der Mensch. Passau: Wissenschaftsverlag Rothe 1997 (with an introduction by Joseph Schmucker-von Koch)

/Körtner, Ulrich (Universität Wien): Der unbewältigte Tod. Theologische und ethische Überlegungen zum Lebensende in der heutigen Gesellschaft. Passsau: Wissenschaftsverlag Rothe 1997 (with an introduction by Joseph Schmucker-von Koch)

/Schaefer, Hans (Universität Heidelberg): Die Entstehung von Krankheiten. Passau: Wissenschaftsverlag Rothe 1997 (with an introduction by Joseph Schmucker-von Koch)

/Spitzy, Karl-Hermann (Universität Wien): Ethische Aspekte der Chemotherapie. Passau: Wissenschaftsverlag Rothe 1997 (with an introduction by Joseph Schmucker-von Koch)

/Wuermeling, Hans-Bernhard (Universität Erlangen): Töten oder Sterbenlassen ? Zur Frage der Patientenverfügung. Passau: Wissenschaftsverlag Rothe 1997 (with an introduction by Joseph Schmucker-von Koch)

/Schroeder, Friedrich-Christian (Universität Regensburg): Besondere Strafvorschriften gegen eigenmächtige und fehlerhafte Heilbehandlung ? Passau: Wissenschaftsverlag Rothe 1998 (with an introduction by Joseph Schmucker-von Koch)

/Gerl-Falkovitz, Hanna-Barbara (Technische Universitaet Dresden): Vom "Unterschied der Geschlechter zur "fliessenden Identitaet" ? Darstellung und Kritik feministischer Thesen zur Medizin. Passau: Wissenschaftsverlag Rothe 1998 (with an introduction by Joseph Schmucker-von Koch)

5 new books (Bundesministerin a.D. Prof.Dr. Ursula Lehr, Deutsches Zentrum fuer Alternsforschung, Universitaet Heidelberg, Prof.Dr. Otmar Wassermann, Direktor des Instituts fuer Toxikologie am Klinikum der Universitaet Kiel, Prof.Dr. Dietrich von Engelhardt, Medical University of Lübeck, Dr.Dr.Kai Vogeley, Labor fuer Psychiatrische Hirnforschung, Universitaet Bonn, Prof.Dr. Kai Taeger, Direktor des Instituts fuer Anaesthesiologie, Klinikum der Universitaet Regensburg) are in print.

Also see: Gehlhaar, Sabine S.(Hrsg.): Neuere Beiträge zur Ethik von Medizin und Moderner Biologie, Cuxhaven/Dartfort: Junghans Verlag 1998

Table of contents:

-Joseph Schmucker-von Koch, Regensburg: Der Begriff der Gesundheit im Kontext der Postmoderne. Zur Frage einer rationalen Begründung des Gesundheitsbegriffs.

-Johann S. Ach, Münster: Über die Grenzen der Medizin und den Traum von der Unsterblichkeit

-Christian A. Stadler, Wien: Euthanasie und Menschenwürde - ein rechtsphilosophischer Versuch

-Christof Schorsch, Berlin: Natur, Wissenschaft und Medizin. Medizinphilosophische Betrachtungen

-Freddy Zülicke, Jena: Klonierung: Züchtungsprogramm oder Reproduktionsmedizin ?

-Ze´ev Levy, Haifa: Bioethics - Some Introductory Remarks



Tagung der Hanns-Seidel-Stiftung: Chancen der Zukunftstechnologien - Fakten und Bewertungsmassstaebe (In cooperation with the Hanns-Seidel-Foundation, Conference: The chances of novel technological developments - facts and evaluation criteria)

Samstag, 02. September 2006:

15.30 Uhr Prof.Dr. Peter Fromherz, Max-Planck-Institut fuer Biochemie, Martinsried (Max-Planck-Institute for Biochemistry, Martinsried): Reagenzglas-Experimente zum Hirn-Computer-Interfacing (in-vitro-experiments relating to brain-computer-interfacing)

19.30 Uhr Prof.Dr.Dr. Joseph Schmucker-von Koch, Universitaet Regensburg, Vorsitzender der Expertenkommission fuer Fragen der Ethik in den Biowissenschaften bei der Europaeischen Kommission, Bruessel (University of Regensburg, chairman of the expert commission for ethics in the life sciences of the European Commission,Brussels): Droht der glaeserne Mensch ? Ethische und rechtliche Probleme im Umgang mit genetischen Daten und Biobanken (End of privacy ? Ethical and legal problems concerning the use of genetic data and biobanks)

Sonntag, 03. September 2006

09.30 Uhr Prof.Dr.Hans-Werner Mewes, Lehrstuhl fuer Genomorientierte Bioinformatik, Wissenschaftszentrum Weihenstephan, Technische Universitaet Muenchen (Chair for genome oriented bioinformatics, Science Center Weihenstephan, Technical University Munich): Bioinformatik: Von der Genomsequenz zum Wissensmanagement (From genome sequences to knowledge management)

14.00 Uhr Rainer Beckmann, Mitglied der Enquete-Kommission "Ethik und Recht der modernen Medizin" des Deutschen Bundestags 2000-2005 (member of the Enquete commission "ethics and law in modern medicine" of the German Parliament 2000-2005): Biomedizin ohne Grenzen ? Menschenwuerde im Kontext moderner Medizintechnologien (Biomedicine without limitations ? Human Dignity within the context of modern medical technologies)

Ort (Location): Konferenzzentrum der Hanns-Seidel-Stiftung München (Conference Center), Lazarettstrasse 33 , D-80636 Munich


The following information is posted here at the request of the European Commission, Brussels:

Researchers, medical professions, industry, academics,NGOs, students and other citizens are invited to actively participate in the citizens' and stakeholders' conference on

"HUMAN GENETIC TESTING, WHAT IMPLICATIONS?"

that the European Commission Directorate "Science and Society" – "Ethics and Science" is organising in Brussels on 6-7 May 2004.

Please see the agenda and register on the website below as soon as possible:

http://europa.eu.int/comm/research/conferences/2004/genetic/index_en. html

To reach this link easily you can proceed as follows:

+ Select the link

+ Right click

+ Click “open Hyperlink”

One year ago, the European Commission invited a high level Expert Group under the chair of Eryl McNally to draft a report on the ethical, legal and social aspects of human genetic testing in research and healthcare applications.Their 25 recommendations are addressed to practitioners and decision makers at local, national and international level.

* Group members will present the recommendations,

* well-known specialists will introduce the discussion with their comments

* and participants are encouraged to actively engage in the debate.

Please find attached the 25 recommendations in English (copies in other EU languages will be available on the website)

The "ethics and science" team of DG Research, European Commission



Abendseminar: Droht der "gläserne Mensch"? Ethische und rechtliche Probleme im Umgang mit genetischen Daten und Biobanken (End of privacy ? Ethical and legal problems concerning the use of genetic data and biobanks)

Referent: Prof. Dr. Dr.habil. Joseph Schmucker-von Koch, Mitglied der Expertenkommission fuer Fragen der Ethik in den Biowissenschaften bei der Europaeischen Kommission, Bruessel

Zeit:Donnerstag, 29. April 2004, 18.30 Uhr

Ort:Hanns-Seidel-Stiftung e.V., Bruno-Möhring-Str. 3 12277 Berlin



Grundlagen der Moderne (Programmauszug, Hanns-Seidel-Foundation)

Samstag, den 24.04.2004

09.00 Uhr "Grundcharakter und Entwicklung der neuzeitlichen Naturwissenschaften."

Prof.Dr.Dr.habil. J. Schmucker-von Koch,Praktische Philosophie,Universität Regensburg

15.00 Uhr "Die geistigen Grundlagen unserer Wirtschaftsordnung"

Prof.Dr. Anton Rauscher,Direktor der katholischen sozialwissenschaftlichen Zentralstelle Mönchengladbach

Sonntag, den 25.04.2004

09.00 Uhr "Die geistigen Grundlagen des modernen Staats"

Prof.Dr. Immo Eberl, Geschichtswissenschaftliche Fakultät der Universität Tübingen

Ort: Wildbad Kreuth, 83708 Kreuth



GENTECHNIK und HUMANGENETIK -Nationale, europäische und globale Herausforderungen (GENE TECHNOLOGY and HUMAN GENETICS - national, european und global challenges,in cooperation with Hanns-Seidel-Foundation)

Samstag, 27. März 2004

10.45 Uhr Eröffnung und Begrüßung

Vorstellung der Arbeit der Hanns-Seidel-Stiftung e. V.

Karl Heinz Keil

11.15 bis 12.00 Uhr Grundlagen der Bio- und Gentechnologie: die internationalen Rahmenbedingungen

Dr. Klaus-D. Fascher, Dipl-Biologe, Bayerisches Staatsministerium für Umwelt, Gesundheit und Verbraucherschutz, München

12.00 Uhr Mittagspause

13.15 bis 14.30 Uhr Fortsetzung der Thematik vom Vormittag

14.30 Uhr Kaffeepause

15.00-16.30 Uhr Humangenomorganisation-HUGO: Herausforderungen eines internationalen Forschungsverbundes

Prof. Dr. Martin Hrabe de Angelis, GSF-Forschungscentrum für Umwelt und Gesundheit, Institut für Experimentelle Genetik, Neuherberg

16.30 bis 18.00 Uhr Biomedizinische Forschung im internationalen Vergleich

Dr.med.vet.Dr.phil.Karin Blumer,Bioethikerin

18.00 Uhr Abendessen

Sonntag, 28.März 2004

09.00 bis 11.45 Uhr Droht der gläserne Mensch? Ethische und rechtliche Probleme im Umgang mit genetischen Daten und Biobanken

Prof. Dr. Dr. Joseph Schmuckcr-von Koch,Universität Regensburg, Institut für Philosophie, Mitglied der Expertenkommission für Ethik in den Biowissenschaftcn bei der Europäischen Kommission

11.45 Uhr Zusammenfassung und Abschlussbesprechung

12.00 Uhr Mittagessen

ORT: Bildungszentrum (Conference Center) Kloster Banz,96231 Bad Staffelstein (between Bamberg and Coburg)



Professor Schmucker von Koch and other Academy Staff are participating in peer group discussions at the following conference:

European Commission, DG Research

Directorate E: Biotechnology, Agriculture and Food

Conference on Ethical implications of scientific research on bioweapons and prevention of bioterrorism

Brussels, 3 - 4 February 2004

Centre Albert Borchette,

Rue Froissart 36,

Brussels, Belgium

The European Commission, Research DG, Directorate E “Biotechnology, Agriculture and Food”, is organising, in the context of an EC funded research project on “Bioethical Implications of Globalisation” co-ordinated by Prof. E. Mordini, Centre for Science, Society and Citizenship, Rome, a conference on “Ethical Implications of Scientific Research on Bioweapons and Prevention of Bioterrorism” to be held in Brussels on 3-4 February 2004.

The Conference aims to bring together a multidisciplinary group of experts to discuss the ethical implications of scientific research on bioweapons and prevention of bioterrorism including issues such as risk communication, dual use technologies and protection of human subjects.

CONFERENCE ON ETHICAL IMPLICATIONS OF SCIENTIFIC RESEARCH ON BIOWEAPONS AND PREVENTION OF BIOTERRORISM

BRUSSELS, 3-4 February 2004

9.30-10.00 OPENING:

Director Chris Paterman, DG Research,

Director Fernand Sauer, DG SANCO, (to be confirmed)

Prof. Emilio Mordini, Centre for Science, Society and Citizenship, co-ordinator of the EC funded research project on the Bioethical Implications of Globalisation.

10.00-10.30 Keynote address delivered by Mrs. Eryl McNally, Member of the European Parliament

Coffee: 10.30-10.45

11.00-13.30 1st Session: Bioweapons

Chair: Prof. John-Erik Stig Hansen , Statens Serum Institut, Copenhagen

Rapporteur: Dr. Tom Novotny, Institute of global health, USA

Human disease and biodefence research: potential benefits but risks of misuse.'

Dr. Charles Penn, Centre for Applied Microbiology and Research, Salisbury, UK

Bioweapons against livestocks

Prof. Bartolomeo Biolatti, University of Turin, and Dr. Rosagemma Ciliberti, University of Genoa, Italy

The Science and Security Dilemma

Dr. Patricia S. Wrightson, The National Academies, Washington, DC, USA

Discussion

Lunch 13.30-14.30

14.30- 17.30 2rd Session: Ethics and Policy of Risk Communication

Chair: Prof. Nuri Akkas, Tubitak, Turkey

Rapporteur: Prof. Reidar Lie, University of Bergen, Norway

The “risk society”

Prof. Guido Martinotti, Dept of Sociology, Milan, Italy

Learning to live with risks

Prof. Manfred Green, Israel Centre for Disease Control, Israel

Public Health in Emergencies

Prof. Eric Noji, US Public Health Service, USA

Discussion

4th February 2004

9.00- 11.30 3rd Session: Ethical Implications of Dual Use Technologies

Chair: Prof. Goran Hermeren, Lund University, Sweden, Chair of the European Group on Ethics in Science and New Technologies

Rapporteur: Dr. Fabrizio Fabbri, International society of Doctors for the Environment, Arezzo.

The coexistence between research policy on certain weapons and disarmament.

Dr. Jean Pascal Zanders, Switzerland

Medical journals and dual use technologies

Dr. Philip Campbell, UK

Should genetic information in the Internet be restricted?

Prof. Ruth Chadwick, University of Lancaster, UK

Coffee 11.30-11.45

11.45- 13.00 4th Session: Protection of Human Subjects Involved in Biodefense Research

Chair: Prof. Judith Sandor, Central European University, Budapest

Rapporteur: Prof. Ruth Chadwick, University of Lancaster, UK

Are international ethical codes applicable to classified biomedical research?

Prof. Reidar Lie, University of Bergen, Norway

Clinical trials in biodefense research

Prof. Jean-François Lacronique, Institut de radioprotection et de sûreté nucléaire, Clamart, France

Lunch 13.00-14.00

14.00-16.00 5th Session: General Discussion

Chair: Prof. Stephanie Bird, editor of the Science and engineering Ethics journal, US

Introduction to the discussion by the chairs and rapporteurs.

Conclusions by Prof. Stephanie Bird

16.00 Closing remarks

Prof. E.V. Cosmi, chairman of the Bioethical Commission of the National Research Council, Italy ( to be confirmed)



For the latest activities concerning lectures, symposia etc. please click on the link for the agenda of the EUROPEAN ACADEMY FOR CULTURAL AND SCIENTIFIC DEVELOPMENTS above.

FORSCHUNGSINSTITUT FUER MOLEKULARE PHARMAKOLOGIE (Research Institute for Molecular Pharmacology)(Director: Prof.Dr. Walter Rosenthal) und MAX-DELBRUECK-ZENTRUM FUER MOLEKULARE MEDIZIN (MDC for Molecular Medicine)(Direktoren: Prof.Dr.Detlev Ganten und Prof.Dr.Jens Reich), BERLIN-BUCH:

BUCHER BIOETHISCHER DIALOG

SYMPOSIUM:

Montag, 22.10.2001, 16.00 Uhr

Prof.Dr.Dr.Joseph Schmucker-von Koch (Universitaet Regensburg): The Ethics Debate about Stem Cell Research within the European Union - current tendencies and possible solutions - Die Ethik-Debatte zur Stammzellforschung in der EU - aktueller Stand und moegliche Loesungsperspektiven

Montag, 10.09.2001, 19.30 Uhr

Prof.Dr.Juergen Mittelstrass (Universitaet Konstanz): Theoretische und ethische Grenzen der Wissenschaft

Prof.Dr. Michael Moxter (Universitaet Hamburg): Biologische Forschung als Bewaehrungsprobe modernen Rechts. Anmerkungen zum Vorrang des Rechts vor der Moral

Ort der Vortraege: Seminarraum des Forschungsinstituts fuer Molekulare Pharmakologie (FMP), Robert-Roessle-Strasse 10, Berlin-Buch


TAGUNG: Chancen der Zukunftstechnologien - Fakten und Bewertungsmassstaebe

Freitag, 02.03.2001

Dr. Heribert Lorenz (Center for Nanoscience, Sektion Physik, Ludwig-Maximilians-Universitaet Muenchen): Nanotechnology- Der Schluessel zum 21. Jahrhundert

Zeit: 19.00 Uhr

Samstag, 03.03.2001

Prof.Dr. Helmut Schmidt (Direktor des Instituts fuer Neue Materialien, Saarbruecken): Nanotechnologie als Chance fuer die Zukunft. Die Rolle der Chemie als Wegbereiter für Nanowerkstoffe

Zeit: 09.00 Uhr

Prof.Dr. Erich Wintermantel (Lehrstuhl und Zentralinstitut fuer Medizintechnik, Technische Universitaet Muenchen): Moderne Biomaterialforschung fuer das Tissue Engineering. Ergebnisse-Maerkte-Entwicklungen

Zeit: 15.00 Uhr

Sonntag, 04.03.2001

Prof.Dr.Dr.habil. Joseph Schmucker-von Koch (Universitaet Regensburg): Ethische Implikationen der nanotechnologischen Entwicklung

Zeit: 09.00 Uhr

Ort aller Veranstaltungen: Bildungszentrum Wildbad Kreuth der Hanns-Seidel-Stiftung


6. NIEDERBAYERISCHE ETHIKTAGUNG in Zusammenarbeit mit der Bayerischen Landesaerztekammer, den Aerztlichen Kreisverbaenden Landshut und Straubing, dem Aerztlichen Bezirksverband Niederbayern sowie der Akademie fuer Ethik in der Medizin (Universitaet Goettingen)

"FOREVER YOUNG" Ewige Jugend, Schönheit und Makellosigkeit - ein Ziel der modernen Medizin ?

Zeit: Samstag, 24. November 2001, Beginn: 09.30 Uhr

Ort: Historischer Rathaussaal, Theresienplatz 20, Straubing

ACHTUNG !!! Die Ethiktagung ist AIP-faehig und es werden 3 Punkte fuer das Fortbildungszertifikat angerechnet !

PROGRAMM:

09.30 Uhr Begruessung und Themeneinfuehrung

Dr. Wolfgang Bomfleur, Aerztlicher Kreisverband Straubing

Dr. Maria E. Fick, Aerztlicher Kreisverband Landshut

09.45 Uhr Prof. Dr. Dr. Joseph Schmucker von Koch (Universitaet Regensburg, Institut fuer Philosophie): Sinn und Fragwuerdigkeit von Utopien der Vollkommenheit in der Medizin)

10.15 Uhr CA Dr. Marita Eisenmann-Klein (Plastische Chirurgie, Caritas-Krankenhaus St. Josef, Regensburg): Die Sehnsucht nach Schoenheit und die Rolle der plastischen Chirurgie

10.45 Uhr Pause

11.15 Uhr Dr. Juergen Bickhardt (Internist und Palliativmediziner, Erding): Alt werden ohne alt zu sein ?

11.45 Uhr PD CA Dr. Gerlinde Debus (Gynaekologie und Geburtshilfe, Krankenhaus Muenchen-Neuperlach): "Lifestyle" und "Anti-Ageing": neue Themen in der Gynaekologie

12.15 Uhr Abschlussdiskussion im Plenum. Moderation: Dr. Maria E. Fick, Aerztlicher Kreisverband Landshut


Wir danken den Firmen AVENTIS, BAXTER-IMMUNO, BETAPHARM Arzneimittel, GÖDECKE-PFIZER, GRÜNENTHAL, HORMOSAN-KWIZDA, ROERIG-PFIZER und SANOFI-SYNTHELABO fuer die freundliche Unterstuetzung

Life Sciences Lecture Series at the ECLA (European College of Liberal Arts, Berlin)

06.07.00 Prof. Detlev Ganten (Max Delbrück Centrum fuer Molekulare Medizin, MDC, Berlin-Buch)

Molecular Analysis of Diseases: The Hypertention Paradigm

14.07.00 Prof. W. Rosenthal (Forschungszentrum für Molekulare Pharmakologie, FMP, Berlin)

Perspectives in Molecular Pharmacology: Implications for Society at Large

20.07.00 Prof. R. Martin (National Institute of Health, NIH, Washington,USA)

From Laboratory Bench to Bedside - Biomedical Research in Multiple Sclerosis

27.07.00 Prof. J. Schmucker von Koch (Universität Regensburg)

Is a value oriented concept of man anachronistic? Sloterdijk´s thoughts on the social function of biotechnology in the light of current bioethical standards

03.08.00 Prof. R. Moreno Diaz (Instituto Universitario de Ciencias y Tecnologias Ciberneticas Universidad de Las Palmas)

The Art of Modelling Brain Functions

10.08.00 Prof. T. Chase (National Institute of Health, NIH, Washington, USA)

Medical Therapy: Scientific Opportunities and Societal Perils

17.08.00 Prof. Jens Reich (Max Delbrück Centrum fuer Molekulare Medizin, MDC, Berlin-Buch)

Bioinformatics - its strategic role in molecular biology and its medical application

All lectures are given at 19oo at the Festsaal of house 214 Karower Str. 11, Berlin-Buch.

Program Coordinator Life Sciences: Dr. S. Mientus, Universitaetsklinikum Benjamin Franklin, Berlin

-------------------------------------------------- ------------------------------------------------------------

Program of the 16th Congress of the Union of Arab Medical Doctors in Europe (ARABMED), Duesseldorf, 17.-19. September 1999

Schirmherrschaft (Honorary Chairman): Frau Dr.B.Fischer, Gesundheitsministerin des Landes Rheinland Pfalz (Minister of Health in the State of Rheinland Pfalz)

Honorary Speaker: Prof.Dr. I. Shatty, Gesundheitsminister von Syrien (Syrian Minister of Health)

Greetings: Dr. Adnan Turkustani, Saudi Arabia

OPENING SESSION:

Time:16.30-18.00 hrs

Place: Spiegelsaal, Renaissance Hotel

1.

Opening speech by: Dr. H. NAGGAR (President of ARABMED)

Introduction by: Dr. F.O.MAHMOUD (Center of Heart Surgery, University of Erlangen-Nuernberg)

Official Greetings from the Government of the State of Rheinland-Pfalz: Mrs. Dr.B. FISCHER (Minister of Health, Rheinland-Pfalz)

2.

Prof.Dr. I. SHATTY (Minister of Health, Damascus, Syria):

The Health System of Syria

3.

Dr.Adman TURKUSTANI (Saudi Arabia):

The Health System of Saudi Arabia

---

SCIENTIFIC RESEARCH

Time: 18.20-19.50 hrs Place: Spiegelsaal

Chairman: Prof.Dr. M. YASS, Dr.N. SRADJ

4.

Prof.Dr.Dr.Joseph SCHMUCKER VON KOCH (University of Regensburg/European Academy for Cultural and Social Affairs), Dr.N.SRADJ

Science Policy and Basic Research Programs

5.

Prof.Dr. M. YASS:

Computers in Medicine

6.

Dr.Gamal HAMMAD:

Communication in Medicine

7.

Prof.Dr. M. AL ATTAR:

Communication and the Arabic Language

Round Table Discussion

16 th Congress of the Union of Arab Medical Doctors in Europe: Interdisciplinary and Intercultural Dialogue. Introductory remarks by Prof.Dr.Dr.J.Schmucker von Koch. Published in "Arab Medical Journal" (Arabisches Aerzteblatt) Vol.9, 3/1999

_____________________________________________________________________

A few copies of the proceedings of the following congress are still available (free of charge). Please order by e-mail from: ljw@gmx.net/

Einige Vortrags-Baende des folgenden Kongresses sind kostenlos noch erhaeltlich ueber: ljw@gmx.net

LES ENTRETIENS DE MONACO 1980

CONGRESS: LE ROLE DE LA MEDECINE DANS LA CRISE DU MONDE OCCIDENTAL

Chairmen of the Organizing Committee: Docteur E. REYMOND, Docteur VOSS, Professeur J. SCHMUCKER(-VON KOCH)

The congress took place in the Palais du Congrès. The organizing committee was cordially received by S.A.S. le Prince Souverain Rainier de Monaco who was then assisted by S.A.S la Princesse Caroline de Monaco.

There was also a banquett taking place in the Palais de Gouvernement for the scientists which was attended by the former French Prime Minister Messmer, and a reception by S.A.S la Princesse Antoinette of Monaco for all congressmen taking place in the famous Hotel de Paris in Monte Carlo.

The congress set a highlight for future activities.

Summary:

Remerciements (Docteur E.REYMOND, a personal friend of the current French President Jacques Chirac)

Allocution de Son Altesse Sérénissime la Princesse ANTOINETTE DE MONACO

Science, spiritualité, crise. La responsabilité du scientifique. (Professeur LEPRINCE-RINGUET)

Responsabilité de la société dans la démission du malade ( Professeur Jacques ELLUL)

La confiance en soi ( Monsieur le Premier Ministre Pierre MESSMER)

Intervention (Professeur LABORIT)

Orientation (Docteur VOSS)

Le Système de Base de Pischinger et son importance dans l´évolution future de la médecine (Professeur G. KELLNER)

Le Système de Base de Pischinger, une voie pour sortir de la crise de la médecine moderne (Docteur PERGER)

La femme qui travaille et ses difficultés de santé (Professeur M. BLOHMKE)

Le médecin et la mort (Docteur Cl. PERRIN)

A propos des phénomènes parapsychologiques (Professeur LIGNON)

Un nouveau regard sur la thérapeutique: de la pharmacologie à la pharmécologie (Docteur J.M.PELZ, former medical adviser to King Ibn Saud of Saudi Arabia)

La biologie de la connaissance (Docteur VARELLA)

Pour une épistémologie de la médecine (Professeur SCHMUCKER(-VON KOCH))

Point de vue du psycho-somaticien. Psychisme et physique: quelques considérations (Professeur B. LUBAN-PLOZZA) ------------------------------------------------------------------------------------------------------------------- -------------------------------------------------------------------------------------------------------------------

JUST IN: The book containing all the lectures and statements listed in the program below has just been published. The publication was sponsered by DRESDNER BANK and BANQUE NATIONAL DE PARIS : University and its Students. International Symposium of Students and Professors (edited by Severin Daum/Tomas Kruta), 650 th anniversary of Charles University. Prague: The Carolinum Press 2000 (ISBN 80-7184-933-2) Please pay attention to the following information:

UNIVERSITAS CAROLINA PRAGENSIS

650 th ANNIVERSARY

INTERNATIONAL SYMPOSIUM OF STUDENTS AND PROFESSORS

UNIVERSITY AND ITS STUDENTS

PRAGUE, CZECH REPUBLIC

September 9-12, 1998

Under the auspices of the Rector of Charles University

Prof.Dr.K.Maly, D.Sc.

Chairman:

Prof. S. Daum, M.D.

Secretary:

T. Kráta, M.D.

Symposium venue:

Faculty of Law of Charles University

Nám. Curieovych 7

116 40 Prague 1

Czech Republic

Date: September 9-12, 1998

Symposium languages: The official language of the symposium is English.

Several lectures will be presented also in German or French. Simultaneous translation into

English, German, French and Czech will be available.

ORGANIZING COMMITTEE:

CHAIRMAN: S. Daum, Charles University Prague, Technische Universitaet Muenchen

VICE-CHAIRMAN:

V. Havránek, Charles University Prague

J. Pánék, Charles University Prague

I. Wilhelm, Charles University Prague

MEMBERS:

J. Herget, Charles University Prague

A. Hornych, University Paris, France

W. Hromadka, University Passau , Germany

J.Koutécky, Charles University Prague

Z. Lojda, Charles University Prague

J. Schmucker-von Koch, University Regensburg, Germany

Students:

T. Krúta, Charles University Prague

D. Lecian, Charles University Prague

P. Matéjcková, Charles University Prague

J. Roehrich, Charles University Prague

PROGRAM:

WEDNESDAY, September 9, 1998

17.00 Opening ceremony at the Great Aula of Carolinum

18.30 Party by the Rector of Charles University

THURSDAY, September 10, 1998

8.30 Opening Speech/ Z. LOJDA, Prague

8.35 Culture and Civilisation/ W.BARTOSZEWSKI, Warsaw

9.15 Discussion

SECTION I FREEDOM AND RESPONSIBILITY - ROLE OF THE UNIVERSITY AND ITS STUDENTS

9.30 Introduction/Ch. MEIER, Munich

10.00 Discussion

10.15 Coffee break

10.35-12.00 Presentations of students/Free papers

12.00-14.00 Lunch break

14.00 Ethics and Science/W.V. WALLACE, Glasgow

14.25 R.I.Frye, Rochester

14.50 Discussion

SECTION II RELIGION, POLITICS AND SCIENCE

14.55 Introduction/T. HALIK, Prague

15.20 Discussion

15.35 Coffee break

15.50-16.55 Presentations of students/Free papers

16.55 Summary

UNIVERSITY STUDENTS DURING THE HISTORICAL DEVELOPMENT OF THE UNIVERSITY (CONFESSIONAL, SOCIAL, NATIONAL, AND RACIAL PROBLEMS)

17.00 EUROPE: F. SEIBT, Munich

17.25 USA: A. SCHIRGER, Rochester

17.45 "Cultural" Revolution/D. Wang, Wuhan, People´s Republic of China

18.05 Discussion

18.25 Summary

20.00 Social Evening (DIXIELAND with Prof.J. TICHY)

FRIDAY, SEPTEMBER 11, 1998

8.30 Historical Science: Myth and Reality/Z. YAVETZ. Tel Aviv

9.05 Discussion

SECTION III UNIVERSITY STUDENTS AND SOCIETY - MUTUAL RELATIONS

9.25 Introduction/ E. HOBSBAWM, London

9.45 Discussion

10.00 Coffee break

10.20-11.55 Presentations of students/Free papers

11.55 Summary

12.00-14.00 Lunch break

14.00 Human Rights - the Role of the University and its Students/A. GROSSER, Paris

14.30 Discussion

Section IV FUTURE OF THE UNIVERITY AND ITS STUDENTS AND PROFESSORS

14.45 Introduction/ W. HERRMANN, TECH UNIVERSITY, Munich

15.10 P. Chartier, Paris

15.30 Discussion

15.50 Coffee break

16.10 The University and its Students in the context of Modern Information Technology/J. SCHMUCKER-VON KOCH, Regensburg

16.30 Discussion

16.45-17.45 Presentation of students/Free papers

17.45 Summary

17.50 Closing Ceremony

19.15-20.00 Ecumenic Workshop - University Church St. Salvator/Music of J.S.BACH

20.30 Closing Party Wallenstein Palace

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STUDENT-SECTION:

Texts will be added either here or in paper form at the secretariat for the upcoming seminars on bioethics !

Für eine kritische Diskussion/for a critical discussion I´m adding here again(im Rahmen unseres Hauptseminars füge ich hier die) the "Declaration in Defense of Cloning.." as well as another text which represents the opposite view (sowie einen weiteren Text an, der eine entgegengesetzte Position vertritt):

DECLARATION IN DEFENSE OF CLONING AND THE INTEGRITY OF SCIENTIFIC RESEARCH

The following declaration is from Free Inquiry magazine, Volume 17, Number 3.

Tuesday, 15 July 1997

We, the undersigned, welcome announcements of major advances in the cloning of higher animals. Throughout this century, the physical, biological, and behavioral sciences have placed important new capabilities within human reach. On balance, these advances have contributed to enormous improvements in human welfare. Where novel technologies have raised legitimate ethical questions, the human community has in general demonstrated its willingness to confront those questions openly and to seek answers that enhance the general welfare.

The cloning of higher animals raises ethical concerns. Appropriate guidelines need to be developed that will prevent abuses, while making the benefits of cloning maximally available. Such guidelines should respect to the greatest extent possible the autonomy and choice of each individual human being. Every effort should be made not to block the freedom and integrity of scientific research.

No one has demonstrated a present capability to clone humans. Yet the very possibility that contemporary achievements may open a path toward cloning has sparked a hail of protests. We view with concern the widespread calls to delay, defund, or discontinue cloning research which have come from sources as disparate as President Bill Clinton in the United States, President Jacques Chirac of France, former Prime Minister John Major of Great Britain, and the Vatican in Rome.

We believe that reason is humanity's most powerful tool for untangling the problems that it encounters. But reasoned argument has been a scarce commodity in the recent flood of attacks on cloning. Critics have delighted in drawing parallels to the myth of Icarus and Mary Shelley's Frankenstein, predicting terrible consequences if researchers dare to press on with questions whose answers "man was not meant to know." Behind the most vituperative critiques seems to lie the assumption that human cloning would raise moral issues more profound than those faced in connection with any previous scientific or technological development.

What moral issues would human cloning raise? Some religions teach that human beings are fundamentally different from other mammals - that humans have been imbued with immortal souls by a deity, giving them a value that cannot be compared to that of other living things. Human nature is held to be unique and sacred. Scientific advances that pose a perceived risk of altering this "nature" are angrily opposed.

Deeply rooted as such ideas may be in dogma, we question whether these should be used to decide whether human beings will be permitted to benefit from new biotechnology. As far as the scientific enterprise can determine, Homo sapiens is a member of the animal kingdom. Human capabilities appear to differ in degree, not in kind, from those found among the higher animals. Humankind's rich repertoire of thoughts, feelings, aspirations, and hopes seems to arise from electrochemical brain processes, not from an immaterial soul that operates in ways no instrument can discover.

The immediate question raised by the current debate over cloning is, therefore, do advocates of supernatural or spiritual agendas have truly meaningful qualifications to contribute to that debate? Surely everyone has the right to be heard. But we believe that there is a very real danger that research with enormous potential benefits may be suppressed solely because it conflicts with some people's religious beliefs. It is important to recognize that similar religious objections were once raised against autopsies, anesthesia, artificial insemination, and the entire genetic revolution of our day - yet enormous benefits have accrued from each of these developments. A view of human nature rooted in humanity's mythical past ought not to be our primary criterion for making moral decisions about cloning.

We see no inherent ethical dilemmas in cloning nonhuman higher animals. Nor is it clear to us that future developments in cloning human tissues or even cloning human beings will create moral predicaments beyond the capacity of human reason to resolve. The moral issues raised by cloning are neither larger nor more profound than the questions human beings have already faced in regards to such technologies as nuclear energy, recombinant DNA, and computer encryption. They are simply new.

Historically, the Luddite option, which seeks to turn back the clock and limit or prohibit the application of already existing technologies, has never proven realistic or productive. The potential benefits of cloning may be so immense that it would be a tragedy if ancient theological scruples should lead to a Luddite rejection of cloning. We call for continued, responsible development of cloning technologies, and for a broad-based commitment to ensuring that traditionalist and obscurantist views do not irrelevantly obstruct beneficial scientific developments.

The signers of the Declaration are Humanist Laureates of the International Academy of Humanism:

Pieter Admiraal, Medical Doctor, The Netherlands

Ruben Ardila, psychologist, National University of Colombia, Colombia

Sir Isaiah Berlin, Professor Emeritus of Philosophy, Oxford University, U.K.

Sir Hermann Bondi, Fellow of the Royal Society, Past Master, Churchill College, Cambridge University, U.K.

Vern Bullough, Visiting Professor of Nursing, California State University at Northridge, U.S.A.

Mario Bunge, Professor of Philosophy of Science, McGill University, Canada

Bernard Crick, Professor Emeritus of Politics, Birkbeck College, University of London, U.K.

Francis Crick, Nobel Laureate in Physiology, Salk Institute, U.S.A.

Richard Dawkins, Charles Simionyi Professor of Public Understanding of Science, Oxford University, U.K.

José Delgado, Director, Centro de Estudios Neurobiologicos, Spain

Paul Edwards, Professor of Philosophy, New School for Social Research, U.S.A.

Antony Flew, Professor Emeritus of Philosophy, Reading University, U.K.

Johan Galtung, Professor of Sociology, University of Oslo, Norway

Adolf Grünbaum, Professor of Philosophy, University of Pittsburgh, U.S.A.

Herbert Hauptman, Nobel Laureate, Professor of Biophysical Science, State University of New York at Buffalo, U.S.A.

Alberto Hidalgo Tuñón, President, Sociedad Asturiana de Filosofía, Spain

Sergei Kapitza, Chair, Moscow Institute of Physics and Technology, Russia

Paul Kurtz, Professor Emeritus of Philosophy, State University of New York at Buffalo, U.S.A.

Gerald A. Larue, Professor Emeritus of Archeology and Biblical Studies, University of Southern California at Los Angeles, U.S.A.

Thelma Z. Lavine, Professor of Philosophy, George Mason University, U.S.A.

Jose Leite Lopes, Director, Centro Brasiliero de Pesquisas Fisicas, Brazil

Taslima Nasrin, Author, Physician, Social Critic, Bangladesh

Indumati Parikh, Reformer and Activist, India

Jean-Claude Pecker, Professor Emeritus of Astrophysics, Collège de France, Academy of Sciences, France

W. V. Quine, Professor Emeritus of Philosophy, Harvard University, U.S.A.

J. J. C. Smart, Professor of Philosophy, University of Adelaide, Australia

V. M. Tarkunde, Reformer and Activist, India

Richard Taylor, Professor Emeritus of Philosophy, University of Rochester, U.S.A.

Simone Veil, Former President, European Parliament, France

Kurt Vonnegut, Novelist, U.S.A.

Edward O. Wilson, Professor Emeritus of Sociobiology, Harvard University, U.S.A.

Affiliations listed for identification only.

Tuesday, 15 July 1997, 00:00:00 GMT David Noelle / admin@SecularHumanism.org


A somewhat opposite view you will find by clicking the following line: cloning, reproductive medicine, genetic engineering: Here you will find the text mentioned above. More texts will be added.

END of STUDENT SECTION

A FINAL WORD TO MY STUDENTS

"He who doesn´t think will be kicked out", Joseph Beuys said ("Wer nicht denkt, fliegt raus"). "Beware, I´m more tolerant" (Joseph Schmucker von Koch)

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some interesting computer hard and software available (for my US based students only)!





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